Comments on: This is Anikka… http://www.anibella.net/2006/12/02/this-is-anikka/ One little girl's journey through surgery. Sun, 23 Aug 2009 05:43:58 -0700 http://wordpress.org/?v=2.8.4 hourly 1 By: Amanda218 http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-3478 Amanda218 Sun, 23 Aug 2009 05:43:58 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-3478 Hello I have a daughter named aubriella with Congenital pigmented nevus. Aubriella is now 19 months old. Unlike your daughter who is beautiful by the way, my daughters nevus is on her left buttocks cheek and I am very scared about the risks of cancer. we are a low income family so she has medicaid which will cover the surgery but I have been wrestling with whether to get it removed or not. But lately we have been leaning towards getting the surgery since with where it is she keeps getting heat rashes on it very badly due to the summer heat in florida. With nevus especially thick like my daughters is its hard to cool down that area. I hope everything goes well with your daughter.we'll keep your family in our prayers as I hope you'll return the favor. Hello
I have a daughter named aubriella with Congenital pigmented nevus. Aubriella is now 19 months old. Unlike your daughter who is beautiful by the way, my daughters nevus is on her left buttocks cheek and I am very scared about the risks of cancer. we are a low income family so she has medicaid which will cover the surgery but I have been wrestling with whether to get it removed or not. But lately we have been leaning towards getting the surgery since with where it is she keeps getting heat rashes on it very badly due to the summer heat in florida. With nevus especially thick like my daughters is its hard to cool down that area. I hope everything goes well with your daughter.we’ll keep your family in our prayers as I hope you’ll return the favor.

]]> By: Katie http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-3332 Katie Sun, 09 Aug 2009 03:35:56 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-3332 Thank goodness for the internet...and for you having enough strength to post this on here. My beautiful daughter is almosy 4 months old and was born with a dime sized congenital nevus that appears to be "falling" out of her right eye.. like a big tear. Now just 4 months later it is twice as big and much darker. I am so torn. I think that removing it would cause significant scarring because it goes into the eye. Would it help to remove just part of it? I have no idea whether or not laser treatments would even work. My heart just breaks for her. Thank goodness for the internet…and for you having enough strength to post this on here. My beautiful daughter is almosy 4 months old and was born with a dime sized congenital nevus that appears to be “falling” out of her right eye.. like a big tear. Now just 4 months later it is twice as big and much darker. I am so torn. I think that removing it would cause significant scarring because it goes into the eye. Would it help to remove just part of it? I have no idea whether or not laser treatments would even work. My heart just breaks for her.

]]> By: tabbitha coughlin http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-1794 tabbitha coughlin Sun, 31 May 2009 04:20:08 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-1794 hi, my name is tabbitha and i am 17 years old. i had a birthmark just like your daughter. mine was a large congenital nevus on the right side of my face. the doctors used tissue expanders to remove a large portion of the birthmark but he left a small piece of it next to my eye. after 2 year i am looking into gettingthe rest of the birthmark removed with either skin grafts or more tissue expanders. hi, my name is tabbitha and i am 17 years old. i had a birthmark just like your daughter. mine was a large congenital nevus on the right side of my face. the doctors used tissue expanders to remove a large portion of the birthmark but he left a small piece of it next to my eye. after 2 year i am looking into gettingthe rest of the birthmark removed with either skin grafts or more tissue expanders.

]]> By: pediatric dermatologist http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-199 pediatric dermatologist Sun, 26 Aug 2007 15:52:11 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-199 interesting dialogue. we should not belittle the potential impact that facial birthmarks (melanocytic or vascular) have upon psychosocial development. some people are stronger for it; others are devastated. as highlighted above, these feelings can change day to day. parental direction can have a significant impact upon the outcome. the risk for cancer within a small to medium melanocytic nevus (less than 20cm in greatest diameter in adulthood) is estimated to be 0-5% and not until puberty or later. laser doesn't reduce this potential. for giant nevi (greater than 20cm in adulthood), the risk is 4-10% and this can occur at any age. most insurance companies will cover the excision for birthmarks especially those with malignant potential. interesting dialogue. we should not belittle the potential impact that facial birthmarks (melanocytic or vascular) have upon psychosocial development. some people are stronger for it; others are devastated. as highlighted above, these feelings can change day to day. parental direction can have a significant impact upon the outcome.

the risk for cancer within a small to medium melanocytic nevus (less than 20cm in greatest diameter in adulthood) is estimated to be 0-5% and not until puberty or later. laser doesn’t reduce this potential.

for giant nevi (greater than 20cm in adulthood), the risk is 4-10% and this can occur at any age.

most insurance companies will cover the excision for birthmarks especially those with malignant potential.

]]> By: lucy reeves http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-179 lucy reeves Wed, 08 Aug 2007 12:42:42 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-179 hi, she is a cute little thing but i cant help but not notice the birthmark maybe thats because i am 24 and was born with giant hairy nevus from the top of my neck to the bottom of my back surrounded by loads of large to tiny ones from my face to my foot. my birthmarks are too large to remove as i have no clear skin at all. However i never got bullied at school went on to have two beautiful birthmark free children and a lovin partner. i have every faith her small birthmark will not effect her life at all she can wear whatever she likes and any surgery she may have will be forgotten when shes an adult. hi, she is a cute little thing but i cant help but not notice the birthmark maybe thats because i am 24 and was born with giant hairy nevus from the top of my neck to the bottom of my back surrounded by loads of large to tiny ones from my face to my foot. my birthmarks are too large to remove as i have no clear skin at all. However i never got bullied at school went on to have two beautiful birthmark free children and a lovin partner. i have every faith her small birthmark will not effect her life at all she can wear whatever she likes and any surgery she may have will be forgotten when shes an adult.

]]> By: Lianne http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-129 Lianne Tue, 17 Jul 2007 03:21:10 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-129 Thank you for sharing your daughter's story and ADORABLE photos with us. I was born with bathing trunk nevus and I would be lying to say it hasn't affected my life. Whether I say it's affected my life for the better or the worse depends on many factors and my day. In hindsight, if I had the choice to tell my mom "Yes, go ahead with the surgeries," or "No, let my birthmark be," I would have told her the later. I know she did her best, however. Thank you, Lianne Thank you for sharing your daughter’s story and ADORABLE photos with us.

I was born with bathing trunk nevus and I would be lying to say it hasn’t affected my life. Whether I say it’s affected my life for the better or the worse depends on many factors and my day.

In hindsight, if I had the choice to tell my mom “Yes, go ahead with the surgeries,” or “No, let my birthmark be,” I would have told her the later. I know she did her best, however.

Thank you,
Lianne

]]> By: Lianne http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-128 Lianne Tue, 17 Jul 2007 02:24:33 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-128 Hello, I was born with giant nevus, bathing trunk. My mom made the decision to have expanders and grafts when I was a child (b. in 1986). I haven't shared this with her or my childhood surgeon, but because of the scars I sort of wish it had been left alone. Hello, I was born with giant nevus, bathing trunk. My mom made the decision to have expanders and grafts when I was a child (b. in 1986). I haven’t shared this with her or my childhood surgeon, but because of the scars I sort of wish it had been left alone.

]]> By: rada http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-120 rada Thu, 12 Jul 2007 09:57:35 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-120 hello my child has a hairy nevus on her left arm, she is 4 now we just came back from LA, children's hospital doctor was great he told us it is better to remove as soon as possible hello
my child has a hairy nevus on her left arm, she is 4 now
we just came back from LA, children’s hospital
doctor was great
he told us it is better to remove as soon as possible

]]> By: paul http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-104 paul Mon, 25 Jun 2007 17:20:58 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-104 hi.my name is paul and i come from manchester in england im 16 and was born with a birtmark around my eye and abit of my cheek it covers my eye lid and under eye.i have had laser treatments when i was younger but they didnt seem to work.The doctors said my brithmark was thick and i would av to have a skin graph i left it for a year and decided not go threw with as it was part of me and i wouldnt look the same and would be strange not see'in it lol.when i was younger my mum would av people walking past and sayin to her have you hit your kid and people saying to me thats a big blackeye ect.i still get it now at 16 but i cope with as i have built up more confidence in myself as i have got older.i hope you like reading this.if you want to no anything else just email me.i will come back on to this site agen to see if anyone has replied to my comment.take care hi.my name is paul and i come from manchester in england im 16 and was born with a birtmark around my eye and abit of my cheek it covers my eye lid and under eye.i have had laser treatments when i was younger but they didnt seem to work.The doctors said my brithmark was thick and i would av to have a skin graph i left it for a year and decided not go threw with as it was part of me and i wouldnt look the same and would be strange not see’in it lol.when i was younger my mum would av people walking past and sayin to her have you hit your kid and people saying to me thats a big blackeye ect.i still get it now at 16 but i cope with as i have built up more confidence in myself as i have got older.i hope you like reading this.if you want to no anything else just email me.i will come back on to this site agen to see if anyone has replied to my comment.take care

]]> By: Kiyomi http://www.anibella.net/2006/12/02/this-is-anikka/comment-page-1/#comment-99 Kiyomi Tue, 05 Jun 2007 04:26:10 +0000 http://anibellanet.robbed.org/2006/12/02/this-is-anikka/#comment-99 Like Bianca, my 4th child was born with a large congenital nevus. it cover his whole left arm. He was born 3-9-2006. I feel what you are deciding. we have heard comments from "king kong" and "monkey". But as a family we call it his warrior arm. and tell the other kids to watch out for his left hook. I have debated about surgery but i also heard too many stories like the one above. I am still researching. but as of now, there are too many stories of the nevus coming back. I don't know if it is worth the pain and scars to put my child through. I've also heard a storie of a child that had a trunk nevus and her parents decided surgery. because the nevus can grow within, it grew into her spine at the age 4 and caused a fatal siezure. She spent her first 4 years of life in and out of surgery, in pain. I know as you do, that you want your child to have the best life you can give them. so question, is it worth the pain and scars? of course each person nevus is unique. and your daughter wouldn't need as much surgery. I was told that the ball is in my court on how people percieve him. Through our families positive energy. He will live a great life with the nevus. But that is not to say we may remove it later. He is only 1yrs old. Like I said, I am still researching. So please keep in touch of what you decide to do and how things work out. And who is your doctor? because mine said surgery is pointless but that is only one doctors view that I have. Please keep in touch with me to assit me in our decision with my son. I am glad I came across this site. Thamk You. Like Bianca, my 4th child was born with a large congenital nevus. it cover his whole left arm. He was born 3-9-2006. I feel what you are deciding. we have heard comments from “king kong” and “monkey”. But as a family we call it his warrior arm. and tell the other kids to watch out for his left hook. I have debated about surgery but i also heard too many stories like the one above. I am still researching. but as of now, there are too many stories of the nevus coming back. I don’t know if it is worth the pain and scars to put my child through. I’ve also heard a storie of a child that had a trunk nevus and her parents decided surgery. because the nevus can grow within, it grew into her spine at the age 4 and caused a fatal siezure. She spent her first 4 years of life in and out of surgery, in pain. I know as you do, that you want your child to have the best life you can give them. so question, is it worth the pain and scars? of course each person nevus is unique. and your daughter wouldn’t need as much surgery. I was told that the ball is in my court on how people percieve him. Through our families positive energy. He will live a great life with the nevus. But that is not to say we may remove it later. He is only 1yrs old. Like I said, I am still researching. So please keep in touch of what you decide to do and how things work out. And who is your doctor? because mine said surgery is pointless but that is only one doctors view that I have. Please keep in touch with me to assit me in our decision with my son. I am glad I came across this site. Thamk You.

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